Experts in rare diseases will discuss prospects of a lekobespecheniye of patients

On December 16, 2022 in information agency "Interfaks" (Moscow) will pass expert discussion "Harmonization of measures of the state support of provision of medicines of patients with rare diseases". Organizers: The All-Russian Union of patients, design office "Rare (orfanny) diseases" FEDERAL STATE BUDGETARY SCIENTIFIC INSTITUTION "NATSIONALNY INSTITUTE FOR SCIENTIFIC RESEARCH OBSHCHESTVENNOGO ZDOROVYA NAMED AFTER N. A. SEMASHKO", INDEPENDENT NONCOMMERCIAL ORGANIZATION CENTER HELP TO PATIENTS "GENOM", with the participation of Good Circle funds. Organizers: All-Russian Union of patients, design office "Rare...