The Moscow patients from SMA and mukovistsidozy complained of refusals in treatment

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The Moscow kliniko-commission of experts of the center of rare diseases at adults refused to three patients with the spinal muscular atrophy (SMA) granting the preparation "Spinraza", despite the conclusion of the federal commission about need of such treatment, reports newspaper "Kommersant" with reference to patients. In two cases Tver district court of Moscow confirmed commission refusal. According to the edition, in October Tver district court of Moscow refused providing with the preparation "Spinraza" for treatment of SMA to 25-year-old Lisova Marina and to 44-year-old Shmeleva Natalia. Patients appealed against refusal in treatment, which...