Chapter of Good Circle fund suggested to appropriate disability to children with genetic diseases right after diagnosis statement

@Takie Dela
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The chairman of the board Good Circle funds Alexander Tkachenko at meeting of advisory council suggested to reconsider the principles of assignment of disability to children with rare genetic diseases. About it writes Vademecum. The executive director of the Union of patients and the patient organizations for rare diseases Belyakov Denise told "Such affairs" that this decision modern and progressive. By words Alexander Tkachenko, the child needs to give the status "disability"...
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Alexander Tkachenko
Last position: Chairman (Fund supports of children with a serious zhizneugrozhayushchy and chronic illness, including rare (orphan) diseases "Krug dobra")
Belyakov Denise